Cedar Falls family shares baby Beau’s journey battling rare form of cancer

CEDAR FALLS, Iowa (KCRG) – Alex and Taylor Butler, of Cedar Falls, say their family is receiving incredible support after their son Beau was diagnosed with a rare cancer earlier this month.

On May 5, the Butler’s and their 6-month-old son Beau left home for the University of Iowa Stead Family Children’s Hospital to have a mass they believed was hemangioma, a dense group of blood vessels removed from Beau’s tongue.

“I’ll probably never forget when the doctor came in and said hi, we got some news from pathology, and she pulled up a chair, and my stomach kind of went to the floor,” said Alex.

The news after that operation gave a different diagnosis. The mass on Beau’s tongue was a tumor called spindle cell rhabdomyosarcoma. Taylor described hearing a rare cancer in her son as terrible, saying, “You don’t expect it. Earth-shaking. It’s like being hit by a bus. “

Alex and Taylor say that since they have spent much of the past few weeks with Beau in Iowa City, they have received a lot of help from family and friends who helped out with their two other sons, 6-year-old Xander and 3-year-old. . old Jameson, who are back home in Cedar Falls.

His parents describe Beau as a very happy six-month-old, always smiling and playing.

The Butler family said they have seen overwhelming support from friends, family and even strangers. Alex’s brother, Jonathan Butler, set up a GoFundMe page to help with medical care for Beau. In just a few days, it reached $ 15,000, tripling its original goal. The total currently stands at more than $ 20,000. Alex and Taylor say they hope to use the remaining donations to help families in similar situations.

Beau underwent another surgery last Friday to get deeper margins and make sure any remaining cancer cells on his tongue were removed. His parents say the operation went well, and Beau has been extubated and recovering from Tuesday. They say the next step is to take Beau home for a few weeks before starting six months of chemotherapy.

“We can’t wait, we’ve been excited to go back home and be reunited as a family, the five of us,” Taylor said.

For updates on Beau’s journey, his family has set up a Facebook page which can be found here.

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